Today I am on Cloud Nine! It was a great day for Gastroparesis. As many of you know, today I was meeting with my Congressman about H.R. 842. The meeting was a HUGE success and he is going to cosponsor the bill!!! There wasn’t even a question in his mind that it was what needed to be done.
In preparation for the meeting, I had created an advocacy binder which was extremely well received. The Congressman indicated that the binder was one of the best he has ever seen. He has been in office since the 90s, so I’m sure he has seen a few binders in his day. The complement on the binder meant almost as much as him cosponsoring the bill. I had poured A LOT of time, energy, & money into that binder and the last thing I wanted to have happen was to have it go straight into the trash after my visit.
This whole experience has been amazing and I am putting my thinking cap on as to the best way that I can help others advocate for Gastroparesis. I’m not quite sure if I can afford to print binders for everyone and am VERY OCD about presentation & packaging so I’m not sure about posting it all on-line. It is copyrighted to Adventures with Gastroparesis, so I want to make sure that the production quality remains top notch. Trust me, I WILL find a solution for how to get advocacy binders into the hands of GPers so that we can continue to make our voices heard.
Now it’s time to go celebrate with an acupuncture appointment to pop this bloated stomach of mine!
THAT’S FANTASTIC AND CONGRATS! I’m sure I can speak for everyone that reads your blog that they will love anything that you can provide in the future from your efforts and research! 🙂
that is double good news for me today, I also found out my SSDI was approved. Now I hope I can get the treatments I so desperately need. Congrats on your success. I now have a huge smile on my face. Thank you for giving us a voice and continuing to fight. Keep up the good work
Wow, Bri, that’s fantastic! Did you finally get it initially, or after an appeal? I was wondering how it was working for GPers… I see YouTube videos of people that also really need it but they keep getting denied!
I got it on the initial try. However, I have several medical issues along with gastroparesis. I don’t think I got approved on just GP alone. I think my other medical factors were big contributors. My advice to others is to be as truthful, honest, and thourough as you can.
Congrats on getting it on your first try! 🙂